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Surgery for Azelie!
(see how that rhymes if you say it all catchy-like?!)
Friday, February 20, 2015
Wednesday, February 18, 2015
Azelie Surgery Update
The details for Azelie's surgery, thus far:
Surgery will be done at The Craniofacial Center in Dallas
which is located in Medical City Children's in Medical City Dallas Hospital on
March 24, 2015 @ 12:30pm
Dr. Jeffery Fearon will be the head surgeon and will be assisted by a neurosurgeon
If you would like to commit to praying for us and all of the medical staff before, during and after surgery, please leave a comment (and a way for me to contact you).
Surgery will be done at The Craniofacial Center in Dallas
which is located in Medical City Children's in Medical City Dallas Hospital on
March 24, 2015 @ 12:30pm
Dr. Jeffery Fearon will be the head surgeon and will be assisted by a neurosurgeon
If you would like to commit to praying for us and all of the medical staff before, during and after surgery, please leave a comment (and a way for me to contact you).
You want to what?!?
After many, many, many appointments with Dr. Phillips in Annapolis, we have all come to the conclusion that surgery is the next step for us. It's so obvious that it's almost like, well, let's get on with it then! I am currently on hold waiting to actually schedule a date for the surgery. And I'm nervous (and I have vertigo).
Anyhow, we got to a point around Christmas where A started showing signs of a ridge protruding on her forehead. It doesn't seem that anything serious is happening, but that calls for another scan of some sort. Which lead us to face the fact that we didn't appreciate our original neurosurgeon as much as we could of, and instead, prefer a surgeon in Texas.
After contacting Dr. Fearon's office, we started the back and forth of pictures, explaining our particular case and making sure Dr. Fearon was the guy for us. I recounted my conversation with A's original neurosurgeon, Dr. Fearon interrupted me to say "actually, neurosurgeons don't fix this problem. I fix this problem." Well then, your boldness has sold you, good sir!
{small pause to speak with the scheduling department}
I will have to wait until Monday to schedule - but here we go!
Anyhow, we got to a point around Christmas where A started showing signs of a ridge protruding on her forehead. It doesn't seem that anything serious is happening, but that calls for another scan of some sort. Which lead us to face the fact that we didn't appreciate our original neurosurgeon as much as we could of, and instead, prefer a surgeon in Texas.
After contacting Dr. Fearon's office, we started the back and forth of pictures, explaining our particular case and making sure Dr. Fearon was the guy for us. I recounted my conversation with A's original neurosurgeon, Dr. Fearon interrupted me to say "actually, neurosurgeons don't fix this problem. I fix this problem." Well then, your boldness has sold you, good sir!
{small pause to speak with the scheduling department}
I will have to wait until Monday to schedule - but here we go!
Monday, September 1, 2014
Pier Giorgio Frassati, pray for us!
Starting September 5th (we like Mother Teresa, too :) we will be praying for the miraculous healing of A's head. Either for the suture she does have to become unstuck, or for a suture to miraculously form. That's not too much to ask, eh?
Pier Giorgio Frassati is in need of another miracle and we are in need of a miracle ... so let's pray together! Starting this Friday, September 5th, we will pray this novena to Pier Giorgio Frassati for the complete healing of A's craniosynostosis.
Blessed Pier Giorgio Frassati ....
PRAY FOR US!
Again, the link is: http://www.frassatiusa.org/index.cfm?load=page&page=256
Pier Giorgio Frassati is in need of another miracle and we are in need of a miracle ... so let's pray together! Starting this Friday, September 5th, we will pray this novena to Pier Giorgio Frassati for the complete healing of A's craniosynostosis.
Blessed Pier Giorgio Frassati ....
PRAY FOR US!
Again, the link is: http://www.frassatiusa.org/index.cfm?load=page&page=256
The End of Summer!
So, it's labor day. And the end of summer. Yes!
Though I documented our progress with chicken scratch on some paper over the last month, I in no way got to write it all out here. I'm still trying to breathe .... maybe it's the humidity here?
Great news -- A is doing fabulously and has been able to release any sort of muscles torques and tightnesses that were impeding her growth and the un-fusing of her suture. Bad news -- it seems that she possibly didn't have a suture to begin with.
The head is composed of several bones and the two of the "top" of the head are called the parietal bones. The parietals run along the sagtital suture, which should expand as a child grows to allow for brain growth. A's parietal bones seem to have a suture that is twisted and overlapped in the front but solid bone in the back. And that seems to be the worst case scenario.
Overall, I'm pretty thrilled that she has been able to receive the treatment she has so far and I'm still hopeful that something might work out.
Though I documented our progress with chicken scratch on some paper over the last month, I in no way got to write it all out here. I'm still trying to breathe .... maybe it's the humidity here?
Great news -- A is doing fabulously and has been able to release any sort of muscles torques and tightnesses that were impeding her growth and the un-fusing of her suture. Bad news -- it seems that she possibly didn't have a suture to begin with.
The head is composed of several bones and the two of the "top" of the head are called the parietal bones. The parietals run along the sagtital suture, which should expand as a child grows to allow for brain growth. A's parietal bones seem to have a suture that is twisted and overlapped in the front but solid bone in the back. And that seems to be the worst case scenario.
Overall, I'm pretty thrilled that she has been able to receive the treatment she has so far and I'm still hopeful that something might work out.
Saturday, August 2, 2014
Hair Testing and the Like
When A was about 5 months old, we started her on a nutritional balancing program. Nutritional balancing (NB) uses hair mineral analysis (a sample of hair in analyzed at Analytical Research Labs in Arizona) to reveal mineral imbalances in the body. It took awhile for her hair to grow in enough to be able to send it away to get analyzed, but her hair came back to show that she had high levels of heavy metals and that her body had several underlying infections she was struggling to fight off.
You can read more about why that would be here.
While we've tried to keep her on a program as much as possible, it was actually much easier to feed her supplements when she was not walking (or climbing, which is her only past time at this point). While we've gotten one round of supplements in daily for the past several months, I'd really like to be getting her supplements in two times daily.
NB focuses on supplying the body with enough minerals to allow it to produce enough energy to deal with any health issues you are facing. Personally, we love NB and after being on GAPS, Paleo and Weston A Price, it's by far the best and most economical option.
I'm pretty excited to see her results as we've continued to have her retested and move forward with NB.
You can read more about why that would be here.
While we've tried to keep her on a program as much as possible, it was actually much easier to feed her supplements when she was not walking (or climbing, which is her only past time at this point). While we've gotten one round of supplements in daily for the past several months, I'd really like to be getting her supplements in two times daily.
NB focuses on supplying the body with enough minerals to allow it to produce enough energy to deal with any health issues you are facing. Personally, we love NB and after being on GAPS, Paleo and Weston A Price, it's by far the best and most economical option.
I'm pretty excited to see her results as we've continued to have her retested and move forward with NB.
July Appointments
So the weeks of three appointments rushed by and we have great news to report! A face has rounded considerably and her occiput (the bone in the back) has "fallen" backwards, which will allow her skull to even out.
In "bad" news .... whenever I refer to bad news, I always think of this :)
Anyhow, her speech pathologist threw out the term "apraxia of speech." That's a bit serious. Or maybe it's not. So, for now, SIGN LANGUAGE! We'll be learning sign language together to help A communicate. Is there a saint for sign languaging?
I will be posting a string of pictures to show our progress after this weekend (the hubby was away this past week, so 'nothing' but eating and sleeping happened this week).
In "bad" news .... whenever I refer to bad news, I always think of this :)
Anyhow, her speech pathologist threw out the term "apraxia of speech." That's a bit serious. Or maybe it's not. So, for now, SIGN LANGUAGE! We'll be learning sign language together to help A communicate. Is there a saint for sign languaging?
I will be posting a string of pictures to show our progress after this weekend (the hubby was away this past week, so 'nothing' but eating and sleeping happened this week).
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