- moved
- started a new business
- had a different medical diagnosis with our first
- had some business trips thrown in the mix
And that's the news from Lake Woebegone.
Saturday, December 7, 2013
That Blogging Hiatus
OK that was a big blogging hiatus. Mostly because nothing exciting is happening but ALSO because we:
And that's the news from Lake Woebegone.
And that's the news from Lake Woebegone.
Thursday, August 29, 2013
Children's Hospital
We just had a second appointment for A this past Monday. It went very well. The diagnosis and prognosis are still the same. Surgery is still suggested and we'll need to start seeing an ophthmalogist to monitor the pressure on A's retinas to make sure there isn't any sort of build up in her skull. We'll see an ophthamologist every six months until she is three years old.
We're seeing her chiropractor every other week and her cranio sacral therapist every week. It's been nice to get into a bit of a rhythm. That's also allowed for a lot of introspection.
Mainly, I think over her first couple of weeks of life and think ... wow, baby, you've been through a lot. The surgery for craniosynostosis for infants under 8 weeks of age might have been something we would have considered but there was no way for us to have received the diagnosis before the 8 week mark. Life is funny like that sometimes.
Our chiropractor started a new adjustment on Wednesday (or I think I should say her body asked for such an adjustment) that is for the hard palate. Moving to new areas in the head is always a good thing in my mind because it seems that more and more pieces of the puzzle are being unlocked. Natural sorts of healing are slow but steady.
Otherwise, there's nothing new to report in our neck of the woods. Many blessings to you and yours!
We're seeing her chiropractor every other week and her cranio sacral therapist every week. It's been nice to get into a bit of a rhythm. That's also allowed for a lot of introspection.
Mainly, I think over her first couple of weeks of life and think ... wow, baby, you've been through a lot. The surgery for craniosynostosis for infants under 8 weeks of age might have been something we would have considered but there was no way for us to have received the diagnosis before the 8 week mark. Life is funny like that sometimes.
Our chiropractor started a new adjustment on Wednesday (or I think I should say her body asked for such an adjustment) that is for the hard palate. Moving to new areas in the head is always a good thing in my mind because it seems that more and more pieces of the puzzle are being unlocked. Natural sorts of healing are slow but steady.
Otherwise, there's nothing new to report in our neck of the woods. Many blessings to you and yours!
Friday, August 16, 2013
An August Update
So, again, I've missed more than one Monday .... le sigh.
At this point, I'm SO excited about our progress. It's slow and steady but it's steady. Our cranio sacral appointments have been excellent for the past two weeks with a lot of movement in the temporal bones that would not be possible if the suture were still completely fused. I'm guessing that would mean we're seeing at least a bit of loosening ... somewhere? Being the parent in this situation is no fun because I can't make any sort of "professional" opinions.
Our chiropractor went away on vacation, so we missed a week and I could definitely tell with A's head shape. She developed almost a ridge on her forehead. She is going through a growth spurt right now and I'm guessing as much support as we can offer would be helpful ... but this is uncharted territory, so your guess is as good as mine.
As for nutrition, we have been able to solidly get A's supplements into her and I think that's really causing a change in her body. Her most recent hair test showed an elimination of toxic metals but still not the types of changes I'd like to be seeing. A protocol also takes some time to get started. The body needs time to start up the eliminative organs and to open the decongenstive pathways. Hopefully the next three months will be huge for her.
Oh! We have officially entered the realm of "crawl/walking," so Daddy has been chasing A around with the sauna lamp. It allows for more saun-ing but it also involves more head bumping. Our first literally never fell. Ever. But A falls constantly and seems to bump her head often. I've fortunately gotten over worrying about it but it definitely forces me to be truly committed to supplementation, sauna therapy and our appointments, as well as making sure the house is baby friendly.
At this point, I'm SO excited about our progress. It's slow and steady but it's steady. Our cranio sacral appointments have been excellent for the past two weeks with a lot of movement in the temporal bones that would not be possible if the suture were still completely fused. I'm guessing that would mean we're seeing at least a bit of loosening ... somewhere? Being the parent in this situation is no fun because I can't make any sort of "professional" opinions.
Our chiropractor went away on vacation, so we missed a week and I could definitely tell with A's head shape. She developed almost a ridge on her forehead. She is going through a growth spurt right now and I'm guessing as much support as we can offer would be helpful ... but this is uncharted territory, so your guess is as good as mine.
As for nutrition, we have been able to solidly get A's supplements into her and I think that's really causing a change in her body. Her most recent hair test showed an elimination of toxic metals but still not the types of changes I'd like to be seeing. A protocol also takes some time to get started. The body needs time to start up the eliminative organs and to open the decongenstive pathways. Hopefully the next three months will be huge for her.
Oh! We have officially entered the realm of "crawl/walking," so Daddy has been chasing A around with the sauna lamp. It allows for more saun-ing but it also involves more head bumping. Our first literally never fell. Ever. But A falls constantly and seems to bump her head often. I've fortunately gotten over worrying about it but it definitely forces me to be truly committed to supplementation, sauna therapy and our appointments, as well as making sure the house is baby friendly.
Tuesday, July 23, 2013
Whoops!
Well, Monday passed me by! Oops.
At this point, we are settled into cranio sacral appointments and chiro appointments (for each of the girls) weekly. Yikes! It's getting to be expensive, but we have such excellent help that I'd like to take advantage while we can.
A's head is showing significant rounding as our appointments progress. I'm considering whether or not I'd like to post pictures due to her privacy being protected. I'm leaning toward it though, just because it's so apparent that her head is rounding. So, stay tuned for that sometime possibly, maybe.
Her cranio appointment was fabulous today. It seems that the suture is becoming flatter as we continue with cranio work. The therapist commented that she felt the two plates in the top of the head moving upward, which ... any movement is good movement!
She is taking a mega nap right now and that is usually a good sign of healing on her part. Good appointments usually equal a lot of sleeping.
In other news, we could be looking at some more life changes, so we'd appreciate your prayers!
At this point, we are settled into cranio sacral appointments and chiro appointments (for each of the girls) weekly. Yikes! It's getting to be expensive, but we have such excellent help that I'd like to take advantage while we can.
A's head is showing significant rounding as our appointments progress. I'm considering whether or not I'd like to post pictures due to her privacy being protected. I'm leaning toward it though, just because it's so apparent that her head is rounding. So, stay tuned for that sometime possibly, maybe.
Her cranio appointment was fabulous today. It seems that the suture is becoming flatter as we continue with cranio work. The therapist commented that she felt the two plates in the top of the head moving upward, which ... any movement is good movement!
She is taking a mega nap right now and that is usually a good sign of healing on her part. Good appointments usually equal a lot of sleeping.
In other news, we could be looking at some more life changes, so we'd appreciate your prayers!
Monday, July 15, 2013
The Weekly Update
I feel like things have finally settled down after all of the moving, so I'm committing to a regular weekly post for this blog until further notice.
This week we have both cranio sacral work and a chiropractor appointment coming up. A is just about to crawl and her teeth are coming in something fierce, but overall she is a happy little bundle of joy. She is usually smiling, and when she's crying it's interspersed with smiles ... I have a lot to learn on that front.
We are continuing to give her supplements. I feel so bad for her though, because they taste terrible and it seems that she's just not quite ready for food (which would help mask the taste a bit). They don't mix well in breast milk and they make her smell awful, but with that small rant aside, she's taking them like a champ.
Sauna therapy also continues and, I think, is quite effective. At least she really likes that part. :)
Should anything miraculous occur toward the end of the week, I'll give an update! Otherwise, thanks for the prayers and keep them up.
This week we have both cranio sacral work and a chiropractor appointment coming up. A is just about to crawl and her teeth are coming in something fierce, but overall she is a happy little bundle of joy. She is usually smiling, and when she's crying it's interspersed with smiles ... I have a lot to learn on that front.
We are continuing to give her supplements. I feel so bad for her though, because they taste terrible and it seems that she's just not quite ready for food (which would help mask the taste a bit). They don't mix well in breast milk and they make her smell awful, but with that small rant aside, she's taking them like a champ.
Sauna therapy also continues and, I think, is quite effective. At least she really likes that part. :)
Should anything miraculous occur toward the end of the week, I'll give an update! Otherwise, thanks for the prayers and keep them up.
Thursday, July 11, 2013
The New Therapist
On Tuesday, A had her first cranio sacral appointment, and WOW! I was really impressed.
Quick background: Cranio sacral therapy is a massage therapy techniques that focuses on the cranials (head) and sacrum (talibone area). It gently removes imbalances in the patient's body to allow the body to heal itself. More can be found here: www.upledger.com
As I held A in my arms, I could see the bones in her head moving around. Strange, yes ... but I good sign in my mind. It was encouraging to know that the bones in her head are able to move still and I know that she will continue to grow and adapt as well as she is able. The body is an amazing thing.
We've really committed to her supplementation protocol and detoxification with infrared sauna therapy. We're hoping that clearing out her heavy metal toxicities will allow her body to adapt as well as it can.
I think we've decided that whether or not her suture comes unstuck, we will not choose surgery. At least for now. We've seen enough to know that her body is capable of adapting as it needs to for now.
Quick background: Cranio sacral therapy is a massage therapy techniques that focuses on the cranials (head) and sacrum (talibone area). It gently removes imbalances in the patient's body to allow the body to heal itself. More can be found here: www.upledger.com
As I held A in my arms, I could see the bones in her head moving around. Strange, yes ... but I good sign in my mind. It was encouraging to know that the bones in her head are able to move still and I know that she will continue to grow and adapt as well as she is able. The body is an amazing thing.
We've really committed to her supplementation protocol and detoxification with infrared sauna therapy. We're hoping that clearing out her heavy metal toxicities will allow her body to adapt as well as it can.
I think we've decided that whether or not her suture comes unstuck, we will not choose surgery. At least for now. We've seen enough to know that her body is capable of adapting as it needs to for now.
Friday, June 28, 2013
Oh look ...
Look at this, two posts, back to back ... wow!
After more reflection on our month, I have to admit that I am nervous/worried/scared/etc. I guess every parent has normal concerns about their children but I it just hit home that having a complication on top of just raising a child is harder that I anticipated.
We've moved several times over the past year, had a baby and recovered from mold exposure and I think we're finally a bit more stable. Fortunately and unfortunately, it's given me the ability to reflect and realize that I actually have been avoiding truly facing our decision about surgery and how that could affect A long-term. Like, I'm avoiding pluming the depths of my emotions and soul to feel how that feels ... ah, feelings, how I can loathe thee at times! Thou art so powerful!
As I looked at her head last night, I thought "man, I hope you're hair grows in soon ... because your head is just funny shaped." I feel in my gut that she's going to be fine but I still wonder how this will affect her and how everything will turn out in the end. If anything, her personality points me to believe she's going to make the best of anything.
After more reflection on our month, I have to admit that I am nervous/worried/scared/etc. I guess every parent has normal concerns about their children but I it just hit home that having a complication on top of just raising a child is harder that I anticipated.
We've moved several times over the past year, had a baby and recovered from mold exposure and I think we're finally a bit more stable. Fortunately and unfortunately, it's given me the ability to reflect and realize that I actually have been avoiding truly facing our decision about surgery and how that could affect A long-term. Like, I'm avoiding pluming the depths of my emotions and soul to feel how that feels ... ah, feelings, how I can loathe thee at times! Thou art so powerful!
As I looked at her head last night, I thought "man, I hope you're hair grows in soon ... because your head is just funny shaped." I feel in my gut that she's going to be fine but I still wonder how this will affect her and how everything will turn out in the end. If anything, her personality points me to believe she's going to make the best of anything.
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