We just had a second appointment for A this past Monday. It went very well. The diagnosis and prognosis are still the same. Surgery is still suggested and we'll need to start seeing an ophthmalogist to monitor the pressure on A's retinas to make sure there isn't any sort of build up in her skull. We'll see an ophthamologist every six months until she is three years old.
We're seeing her chiropractor every other week and her cranio sacral therapist every week. It's been nice to get into a bit of a rhythm. That's also allowed for a lot of introspection.
Mainly, I think over her first couple of weeks of life and think ... wow, baby, you've been through a lot. The surgery for craniosynostosis for infants under 8 weeks of age might have been something we would have considered but there was no way for us to have received the diagnosis before the 8 week mark. Life is funny like that sometimes.
Our chiropractor started a new adjustment on Wednesday (or I think I should say her body asked for such an adjustment) that is for the hard palate. Moving to new areas in the head is always a good thing in my mind because it seems that more and more pieces of the puzzle are being unlocked. Natural sorts of healing are slow but steady.
Otherwise, there's nothing new to report in our neck of the woods. Many blessings to you and yours!
Thursday, August 29, 2013
Friday, August 16, 2013
An August Update
So, again, I've missed more than one Monday .... le sigh.
At this point, I'm SO excited about our progress. It's slow and steady but it's steady. Our cranio sacral appointments have been excellent for the past two weeks with a lot of movement in the temporal bones that would not be possible if the suture were still completely fused. I'm guessing that would mean we're seeing at least a bit of loosening ... somewhere? Being the parent in this situation is no fun because I can't make any sort of "professional" opinions.
Our chiropractor went away on vacation, so we missed a week and I could definitely tell with A's head shape. She developed almost a ridge on her forehead. She is going through a growth spurt right now and I'm guessing as much support as we can offer would be helpful ... but this is uncharted territory, so your guess is as good as mine.
As for nutrition, we have been able to solidly get A's supplements into her and I think that's really causing a change in her body. Her most recent hair test showed an elimination of toxic metals but still not the types of changes I'd like to be seeing. A protocol also takes some time to get started. The body needs time to start up the eliminative organs and to open the decongenstive pathways. Hopefully the next three months will be huge for her.
Oh! We have officially entered the realm of "crawl/walking," so Daddy has been chasing A around with the sauna lamp. It allows for more saun-ing but it also involves more head bumping. Our first literally never fell. Ever. But A falls constantly and seems to bump her head often. I've fortunately gotten over worrying about it but it definitely forces me to be truly committed to supplementation, sauna therapy and our appointments, as well as making sure the house is baby friendly.
At this point, I'm SO excited about our progress. It's slow and steady but it's steady. Our cranio sacral appointments have been excellent for the past two weeks with a lot of movement in the temporal bones that would not be possible if the suture were still completely fused. I'm guessing that would mean we're seeing at least a bit of loosening ... somewhere? Being the parent in this situation is no fun because I can't make any sort of "professional" opinions.
Our chiropractor went away on vacation, so we missed a week and I could definitely tell with A's head shape. She developed almost a ridge on her forehead. She is going through a growth spurt right now and I'm guessing as much support as we can offer would be helpful ... but this is uncharted territory, so your guess is as good as mine.
As for nutrition, we have been able to solidly get A's supplements into her and I think that's really causing a change in her body. Her most recent hair test showed an elimination of toxic metals but still not the types of changes I'd like to be seeing. A protocol also takes some time to get started. The body needs time to start up the eliminative organs and to open the decongenstive pathways. Hopefully the next three months will be huge for her.
Oh! We have officially entered the realm of "crawl/walking," so Daddy has been chasing A around with the sauna lamp. It allows for more saun-ing but it also involves more head bumping. Our first literally never fell. Ever. But A falls constantly and seems to bump her head often. I've fortunately gotten over worrying about it but it definitely forces me to be truly committed to supplementation, sauna therapy and our appointments, as well as making sure the house is baby friendly.
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