Pier Giorgio Frassati, pray for us!

Starting September 5th (we like Mother Teresa, too :) we will be praying for the miraculous healing of A's head.  Either for the suture she does have to become unstuck, or for a suture to miraculously form.  That's not too much to ask, eh?

Pier Giorgio Frassati is in need of another miracle and we are in need of a miracle ... so let's pray together!  Starting this Friday, September 5th, we will pray this novena to Pier Giorgio Frassati for the complete healing of A's craniosynostosis.

Blessed Pier Giorgio Frassati ....

PRAY FOR US!





Again, the link is:  http://www.frassatiusa.org/index.cfm?load=page&page=256

The End of Summer!

So, it's labor day.  And the end of summer.  Yes!

Though I documented our progress with chicken scratch on some paper over the last month, I in no way got to write it all out here.  I'm still trying to breathe .... maybe it's the humidity here?

Great news -- A is doing fabulously and has been able to release any sort of muscles torques and tightnesses that were impeding her growth and the un-fusing of her suture.  Bad news -- it seems that she possibly didn't have a suture to begin with.

The head is composed of several bones and the two of the "top" of the head are called the parietal bones.  The parietals run along the sagtital suture, which should expand as a child grows to allow for brain growth.  A's parietal bones seem to have a suture that is twisted and overlapped in the front but solid bone in the back.  And that seems to be the worst case scenario.

Overall, I'm pretty thrilled that she has been able to receive the treatment she has so far and I'm still hopeful that something might work out.